My regular reader is aware of my battle with my stomach, but a newcomer may not be, so here’s a short recap: about four years ago I was diagnosed with gastroparesis, a stomach disorder that prevents proper digestion. It was described to me as such: every person has a blender in their stomach, and my blender had rusty blades. As time went on, rusty blades turned into no blades. It made for uncomfortable situations, like not being able to eat when hungry or feeling nauseous and bloated in the mornings, and it made for terrible situations, like landing in the ER because I was vomiting blood and had stabbing abdominal pains. I was on a variety of medications for years, all of which proved useless. Then they started doing regular dilation of my pyloric sphincter (the muscle that controls food leaving the stomach.) This provided a month or two of temporary relief, and then it was back to the ER. They are thinking I might have something called pyloric stenosis, which is a disease that is common in baby boys, not 36-year-old women.
That brings us up to now. Yesterday, I had my regular procedure with the added benefit of Botox injections to my pyloric muscles. This is supposed to cause the muscles to relax and smoothen so as to transport food easier. I read up a little on it, and results vary. Some studies say it’s beneficial, some say they found no results. All agree it can’t hurt to try, and I am in that frame of thought right now. I’ve been living with this for years and any opportunity for relief is one I am willing to take.
If this doesn’t work and I end up back in the hospital, then I will be talking to my doctor about surgical options out of town. She mentioned some doctors in Cleveland that may be able to help. I don’t want it to come to that, but I’m not going to go though the rest of my life like I have the past four years. It has been terrible. I haven’t been able to hold a steady job. It has wreaked havoc on my depression. The medical bills are out of control.
But I’ll be damned if I let any of that get me down while I am trying to heal and improve my health. I intend to do whatever I can to beat this ridiculous pain-in-the-ass disease and get back to the life it has stolen from me. Today, I am hopeful. I’m not hungry yet, but I’m drinking coffee again, which was a huge turn-off just a few days ago. I am sitting in my office with the sun streaming though the window and I am content in knowing that there is a possibility, however small, that I might be well.